Tag Archives: lyme disease

Patience and Waiting for Healing

Posted on by swollenmystery

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One might think with all the detoxing, eating so well and anti-bacterial treatments, my pain levels would be great. Unfortunately, I can’t yet proclaim I’ve been healed from Lyme disease or my co-infections. But I can attest to gaining patience and obedience when it comes to waiting for healing. You might ask How do you gain patience when every cell in your body feels like it’s under constant attack? There are several things that have helped me get through the last few months.

  1. Books – My good friend Tim at Life Fitness Academy recommended a book called Suffering and Sovereignty of God. To my great surprise, my wife already read the book this year so we had a copy in our library. It took me a while to start it but once I did every time I had to stop I couldn’t wait until the next time I could continue reading. The authors discuss their own sufferings and I can relate to their questions and what they went through. There are so many Scripture references that it made me seek out those passages, read them, and think about them. When I read about Joseph’s suffering in the Old Testament or Paul’s suffering in the New Testament and realize suffering has been around for such a long time, or that God can allow suffering for a greater glory we don’t understand, my short life comes into perspective and it helps me be patient.
  2. Family – Often I overlook this one, but I gain so much patience by just watching those around me. My mom has taught me patience without ever saying anything. When she was only a few years old she unexpectedly caught the polio virus, leaving her with partial paralysis and the use of only one leg for the rest of her life. Growing up with a mom who always walked with crutches and never complained once to her children is not only astonishing, but it helps me see that if she can get through it, I can have more patience for my suffering. Even if I suffer the rest of my life, I still had 30 years more mobility than she ever had. To this day, my mother has more energy and spirit than any other woman I know at her age. Who would think someone with a lifelong disability could always be on the move? She’s an avid shopper and I often joke with my brother or sister about how mom can out-walk us all. It’s humbling to think that she raised 3 kids, went back to school, and took on a new career later in life while patiently realizing she could not physically do what most moms do.
  3. Knowledge – If this disease has taught me anything, it’s that there is hope. Perhaps not for a cure in the short-term, but hope that my Lyme and co-infections will go into remission. Hope that others with Lyme can experience relief. Hope that others with similar auto-immune diseases can feel like they are making progress toward healing. Reading so many studies and articles, and listening to doctors and specialists has shown me that there are a lot of conflicting reports out there. It can be frustrating sorting through what is right, what is wrong, and what we just don’t know. However, every time I read an article or listen to a speaker talking about how they have seen progress with a patient or have experienced relief themselves, I gain a little more hope. Along with that hope I gain a little more perseverance. And with that perseverance I acquire a little more patience.

Lately I’ve realized how much our society trains us for the quick fix. “Take these pills and come back in a month”. Who doesn’t want the most immediate path to feeling better? I’ve fallen right into the trap of impatience and doubt when it comes to healing. Maybe that statement should be, “Eat like this for a couple years, give your body the time it needs to heal, and don’t worry about ever having to come back”. That’s the kind of healing I want. One of the hardest things to deal with when going the natural route is the patience and discipline it takes to get through to the end and not settling for the quick fix. If taking that route, whether it’s 1 year or 10, gives my immune system a chance to get back on track, I’m opting to be patient for a little while longer.

What Does Detoxing From Lyme Disease Feel Like?

Posted on by swollenmystery

If you’ve ever heard someone say, “I’m doing a detox” or “I’m on a detox protocol,” you may wonder, what does that feel like? Perhaps you’ve seen people downing an entire glass, or better yet, mason jar of green liquid sludge for lunch. Or maybe you’ve been brave enough to try a shot of wheatgrass on a dare.

Detoxing can be done by a number of methods. Baths in epsom salts or ginger, eating blended raw green vegetables, herbs, saunas, and exercise can all assist the detoxification process. Most of the time you’ll probably hear about these things helping you to feel better. But can they make you feel worse? They do certainly help to make the body feel better eventually, but unless the process is moderate, detox can be immensely painful. After I chose to treat my chronic Lyme naturally, I decided to continue searching for ways to eliminate toxins from my body.

You might wonder why I continue to pursue detoxification when I should be able to detox for a period and then be free and clear. The process of killing bacteria in your body can flood your system with toxic, dead organisms. With persistent bacterial infections, particularly Lyme bacteria, which love to change forms and hide in tissues, that toxic die-off is in a constant cycle. I sometimes picture walking through a battlefield with millions of dead soldiers scattered all across the landscape left over from a massive war the day before. Detoxification is like the clean up, so your internal landscape can once again be clean and flourish with life. Similar to battle, it’s the casualties that hurt.

Recently I’ve been feeling effects of my detoxing more than the past. To be blatantly honest–it feels awful! As the day nears nightfall I usually feel heavy and fatigued. I try so hard to avoid movements like turning my head or twisting my torso because my muscles ache. My skin aches and is sensitive to the touch. The aches are so deep I can feel them in my bones. Getting up from sitting feels like my upper body weighs 900 pounds and my legs beneath my knees are hesitant to move for fear of being crushed under the pressure. My entire body feels the need to stretch, but moving only causes a sense that my limbs will tear from their joints. I wake up at night sweating as my body tries to crank up the heat and move toxins out through my skin. Each morning I get up early because the aggravation near my liver and kidneys is too painful while laying in bed. If you’ve ever gone for a month of not exercising and then did a gruesome 2-hour workout, you know the feeling of soreness you get a day or two later. When your body is laced with millions of toxins and dead pathogens it feels like that muscle soreness through your entire body is multiplied by 10.

So what have I learned from all this? Detoxing should be carefully planned and it’s best to proceed slowly in small doses, no matter which method you choose. It also helps to choose one method at a time. My most painful experiences have occurred while zapping with electromagnetic frequencies, drinking green smoothies, taking multiple herbal tinctures, and exercising. I constantly strive to find ways to kill spirochetes or harmful bacteria but I also catch myself realizing that the body needs time expel all those unwanted organisms and chemicals. If I can remember to be patient, I might feel a little better.

Healthy Eating and Healing While Traveling

Posted on by swollenmystery

Since my Lyme Disease diagnosis and finishing 3 months of strict detoxification, I’ve been extremely careful about what I should and shouldn’t eat. So far I’ve made a lot of progress healing my gut and reversing damage done to my body from years of medication. However, I believe it will still take years to recover the health I’ve lost. My knees continue to swell, but the effusions now come and go. The left and right knee tend to flare up independently now as well. It’s discouraging but I still consider this progress after years of nothing but constant swelling on both sides.

It’s been 6 months since starting the detox protocol. Most of my meals now consist of local pastured eggs, whole sprouted or soaked grains, wild salmon or sardines, local grass-fed beef and pasture-raised chicken. I try to keep 70-80% of my diet to vegetables or fruit, all organic, local if I can find it, or chemical free. The downtown farmers’ market and our summer vegetable CSA have helped immensely with that goal. Some days I find it strange to look back and notice that my wife and I prepare only 2-3 meals a week that actually contain meat. I’m now gaining weight (the good kind—lean muscle) and eating more vegetables than ever! I also avoid processed sugar like the plague, allowing only small doses of sucanat, local wild honey, or other natural sweeteners like dates or fruits. The same goes for any processed or packaged foods actually. If it comes in a box or plastic wrapper I proceed slowly with great caution, then peer skeptically at the ingredients list to make sure it has less than 6 and all of those are recognizable as real, whole foods.

While my routine may sound obsessive, it’s helped guide me further to my goals, slowly but surely. The biggest problem for me about living this highly nutritious counter-culture lifestyle is traveling. I love to see family. I love to visit friends. And I take great pleasure in seeing new parts of this world, whether driving or flying. But I confess I get a little stressed out when it comes to deciding what to eat on the next trip. At first I dreaded eating while away from home, but this summer forced me to figure out ways to continue to eat healthy while out of my comfort zone. In just the past few months we’ve driven to Wisconsin several times, visited family and friends in St. Louis, Nashville, Branson, Colorado Springs twice, and even Montana! Sometimes we stayed in hotels. Other times we crashed with family in an extra bedroom. And other times we shared a condo. This meant each trip we needed to decide how to prepare meals, whether it was in a hotel with just an ice-filled cooler, a mini fridge, and microwave; a condo with full kitchen appliances; or a family’s house where we could cook together.

Here are some ways to make life easier while traveling, especially when you have health concerns or trying to heal your body with a food detox program.

If possible, bring the Vitamix (or any blender). This is mostly if you want to keep a detoxing meal plan and blend most of your meals. It is helpful, but only if you aren’t flying to your destination where luggage space is limited. I learned early in my detox protocol from the guys at Life Fitness Academy how valuable a good blender can be. And it helps when you’re not the only one who travels with a giant kitchen appliance.

Map grocery and health food stores at your travel destination. I got a few laughs when we traveled this summer from Des Moines to Kansas City to Branson to Nashville to St. Louis and back. We had a nice connect-the-dots map of each Whole Foods location along our journey. If visiting smaller cities or remote locations, do a quick google search for the name of the town and terms like local, sustainable, grass-fed, pastured, organic restaurants or stores. Surprisingly we found a few gems while in Bozeman, Montana, like the local Bozeman COOP and Blue Planet Natural Grill in Omaha, Nebraska while driving across I-80 to Colorado. Happycow.net sometimes has a few decent listings for health stores and restaurants too.

In a pinch, bring emergency foods. Packing pulled meat (courtesy of Wallace Farms grass-fed beef ribs) sandwiches on easily-digested sourdough with chopped vegetables and fruit saved us a few times while trekking 18 hours on our trips to Colorado and back. Most of the time we would bring a large glass jar of milk kefir, tea, kombucha and a few jars full of freshly-blended green smoothies. (When I knew we wouldn’t have time to blend or it just wasn’t feasible in the hotel, I’d bring a few pre-made smoothies made the night before our trip.) Normally I wouldn’t recommend blending too far in advance because the longer the blended vegetables and fruit are exposed to air the faster they oxidize and lose their nutritional value. But as long as you keep them cool and fill your containers so there’s no air inside you should be ok for a couple days. Most of my green smoothies still tasted good after 2 days, but I wouldn’t go longer.

Pack for your family and friends too. If it’s hard to decide where to stop and eat when you have traveling companions, pack along some sandwiches and snacks for them too. It helps if you bring some foods that appear normal and not just kombucha or sardines. While you’re prepping for the trip, make a few extra meals that you can share. Maybe you can convince them to start eating healthy too. My wife and I found that this works when staying with family and friends too. We offer to prepare the meal and shop for food. Or ask to make a salad to share with a home-cooked meal if eating at someone’s home. On a recent trip we had dinner at a friend’s home, made a quick homemade spelt pizza dough, and quickly threw together a meal. I enjoyed an organic, all vegetable pizza with goat mozzerella, while everyone else added more traditional pepperoni and sausage. It was fun, not too stressful, and easy for everybody.

If driving, bring your own easy-to-digest foods. Bubbies pickles or sauerkraut are tasty and easy to eat (if you’re too busy to make your own lacto-fermented veggies like me). Sardines also work well if you need a little meat with all those blended vegetables. They’re quick to eat and rich in good fats and protein. Warning! If you take sardines, be careful to eat them as far away from people as possible. I love them, but quickly realized most people don’t love the smell. GT’s Kombucha is also usually available at most healthy grocery stores and even a lot of supermarkets that have health sections. The probiotics in raw kombucha can help greatly in digesting other not-so-good foods along your trip and they taste so good.

If flying, pack a small, carry-on size cooler or lunch bag. This might sound intimidating due to the TSA guidelines and ban on bringing liquids or ice. But there’s still hope. Freeze some fruit like grapes the night before and throw them in instead of ice while on the plane. I successfully made it through security with frozen fruit, a few sandwiches, some chopped vegetables, and a small container of probiotics while on our plane trip to Montana. If the fruit thaws quickly, you can always pack an empty ziploc bag and ask for some ice from an attendant while on the plane too.

Bring fresh vegetables and fruit first, with nuts, raw granola, and dried fruit as a backup. The advantage of nuts, granola or dried fruit is their portability and lack of spoilage. But they can be harder to digest vs. fresh whole foods like fresh cucumbers, celery, or carrots. Plus the extra water from the fresh food is an added bonus especially when flying and everything seems to dry you out. On our last flights I consciously tried to eat more fresh vegetables while only eating a little granola or dried fruit and it was the first time I can remember in years that I had no indigestion once we arrived at our destination.

Take digestive enzymes and probiotics during days of travel or days when you need to eat less than healthy food. Sometimes when you’re with family or friends there just isn’t an option for eating well. Luckily I haven’t had many while on my detox, but for the few I respectfully take a probiotic and a few digestive enzymes along with or between my meals. They should help the digestive process and get some of those foods to move more quickly through you.

If you’re at a restaurant and they don’t exactly follow the strictest standards when it comes to eating easily digestible foods, you can usually order a salad. I know it sounds boring, but your gut will thank you for it later. Some restaurants will even bring you olive oil and vinegar instead of heavily processed salad dressings if you ask nicely.

Continue to drink water during the entire trip. Even if it makes you stop at a rest stop every half hour or it costs $10 in the airport because you can’t bring your own, it’s worth it. The worst parts of my trips have been when I couldn’t get enough water. And when food isn’t moving through you efficiently and digesting properly, you feel awful. Granted there are circumstances you just can’t help, but water is at least pretty good for hydration and easily obtainable.

These are just some of my high priorities while traveling and eating healthy. If you want to delve further check out a great post from GNOWFGLINS about eating real food on the road.

Do you have any tips on traveling while detoxing or just eating healthy while away from home? If so, I’d love to hear them.

On The Right Path, But Not Out Of The Woods Yet

Posted on by swollenmystery

This weekend I completed (celebrated) finishing three months of a detox protocol for healing my gut naturally. While I’m not completely going back to the way I used to eat, I am going to start re-introducing more foods besides raw vegetables and bone broths. I feel like it’s graduation day. Welcome to life in post detox! Yes, it’s affected me that much.

It’s so exciting to see the progress, even though it’s slower than I hoped at times. But I consider this detox protocol successful because it was designed to heal my gut, eliminate built-up antibiotics and other medicines I’ve taken over the years, and therefore allow my immune system to start to function properly again. I truly believe I’ve seen that happen over these last 12 weeks. The first signs were changes in bowel movements as my stools became more frequent, softer, and normal. Then after two months I finally began to see changes in my knee inflammation. For the last year both of my knees have always been swollen (a lot), even while on Prednisone for so long. This was the first time my knee effusions have shrunk to almost to normal size. Now from week to week I’m noticing my knees still flare up but usually one at a time and the swelling tends to be isolated to only one knee instead of both. Overall, walking, getting up and down from a seated position, and walking stairs have been so much easier, too. Even though I still have the swelling, at least something is happening. I’ve also been able to start exercising more often. And the flare-ups seem to be random and unrelated to the workouts, which is a good sign. Hopefully it’s a herx reaction meaning the bacteria is finally on its way out.

The other night my wife and I went through a list of symptoms I wrote down when I started the detox and most are now completely gone or dramatically lessened.

Symptoms now gone:

  • Near constant headache behind eyes, on sides of neck, and at base of skull.
  • Tongue thrush, sore and irritated in the back and sides with a white film in back. Metallic taste, pain when I curled tongue, small white spot still present in the front.
  • Sinuses stuffed.
  • Spine and back pain, stiffness, soreness, tenderness to touch especially near the spine, especially on the left side with any movement. Middle of back near spine achy, sore, stiff all the way to the bottom of ribs.
  • Intermittent pain in low back where kidneys are.
  • Chest feels heavy and flu-ish off and one during the day. Sometimes it’s hard to take deep breaths.
  • Muscle soreness in hips and low back, especially after workouts.
  • Off and on stomach cramping.
  • Constipation and very hard stool. Bowel movement about every two days.
  • Rare instance of overnight incontinence, no pain with urination.
  • Need to get up one to three times every night to urinate.
  • Wake up every one to two hours at night because of neck and back pain. Very uncomfortable to be on side because of neck and shoulder pain. Painful to have knees touch. Some nights too painful to roll over in bed. Very high fatigue level during the day as a result.
  • Low concentration.
  • Muscle twitches–random, but in all major muscle groups. Lasts 30 minutes to three hours.
  • Upper legs are restless, especially when exhausted. Muscle weakness in legs.
  • Very hindered mobility and altered gait.
  • Lower legs not very flexible–possibility of fluid moving down into calves.
  • Two rough circular patches of skin on the left arm. Present for two months, did not respond to fungal cream (suspected ringworm at first).
  • Nightly fever, highest 100.3, often at 99. Feel feverish nightly regardless of temperature.
  • Night sweats.
  • Difficulty regulating temperature–has chills all day long even while wearing multiple layers. Has chills at night before getting fever.
  • Occasional nausea.
  • Occasional lightheadedness, especially after walking for 10 or more minutes.
  • Some mild depression.
  • Feel more thirsty.
  • Two episodes of waking up in the middle of the night to numb forearms and hands while laying on back. Multiple episodes of numb shoulders, forearms, and hands while laying on side.

Symptoms I still have but have improved drastically:

  • Somewhat blurred vision. (Fine with glasses for astigmatism.)
  • Neck pain, stiffness, soreness, tenderness to touch, some seizing, constant aches, hard to stretch without pain. (In suboccipitals, scalenes, and sternocleidomastoids—now only present occasionally.)
  • Aching collarbone, pain when moving shoulders. (Used to not be able to lift arms above head without pain—now that is no problem.)
  • Very low libido.
  • Knees are consistently swollen, the left more severely, although both have lots of fluid constantly. Pain underneath front outsides of both kneecaps while standing. Movement causes popping. Knees hurt, but not when sitting still. Movement hurts, load bearing/pressure is extremely painful. Can’t perform full leg extension. (Much improvement in past few weeks both in flexibility and movement due to less swelling.)
  • Deep off and on ache in tooth and lower jaw on the back left bottom molar area. Dental examination revealed normal jaw and tooth. (Random ache still pops up occasionally.)

Symptoms I’ve experienced since the detox but did not have before (most likely Herxheimer reactions to my treatment)

  • Numbness, burning and sometimes sharp stabbing pains off and on during the day or night. Isolated to upper left thigh. Pain, numbness comes and goes day to day.
  • Acute, sharp pains in knees and occasionally feet or wrists. This has only happened occasionally.

For the upcoming months I’m on a quest, no longer for diagnosis, but a journey to find healthy, nutritious food and continue to eat the best I can to provide more healing each day. Lyme Disease is proving difficult to eliminate, but I’m confident that whole, raw, fermented and even cooked natural foods can go a long way in providing the body what it needs to fight off harmful bacteria and organisms.

Diagnosis Solved?

Posted on by swollenmystery

During the past  three years I’ve developed an enormous amount of skepticism, caution and indecisiveness when it comes to the medical world. I’ve felt that every path has led to a dead end. Often the treatments I experienced have made my symptoms of inflammatory arthritis worse. Yet I now look back at those events as learning experiences. Perhaps God was showing me something, giving me knowledge and experience with those events for a purpose. A purpose which I may never understand. But that’s ok. Through an unexpected chain of events, meeting new people, finding new doctors and growing closer to Him, I finally have a diagnosis.

Last week my western blot test came back CDC positive for lyme disease. Along with that I tested positive for several coinfections including Bartonella, Chlamydia Pneumonia, Mycoplasma and HHV6. Wonderful? Yes! In fact, I’ve never been so happy to have a diagnosis. A diagnosis that can be treated. Better yet, a diagnosis that can be treated with a possibility of complete remission!

So that’s it. I have lyme disease. More specifically chronic lyme disease, as it’s apparently settled in for quite some time. The greatest part of all this is knowing what to treat and having confidence that there is an end in sight. So what will I do with this blog now that I have a diagnosis? I will continue to post progress during my treatment. I’m continuing the natural detox protocol while introducing other all natural treatments aimed specifically at the bacterial infections. I plan to continue providing a resource for those with not only lyme but other related autoimmune diseases. My hope is for the best possible diagnosis and healing of anyone that continues to suffer through the mystery of pain and inflammation.

Healing Inside Out: Green Smoothies & Bone Broths

Posted on by swollenmystery

Two weeks ago I felt so much despair. So helpless. So much like I was traveling down the wrong path. So I prayed. I talked endlessly with my wife and family and friends about what to do next. And then I prayed some more.

Now I know God works in mysterious ways, but I never expected answers to fall right in my lap so suddenly. Of course I was praying for healing, but I was also praying for direction. And that’s exactly what I got.

At this time I was facing more mysterious blood tests, showing signs of continued inflammation, increasingly painful symptoms all over my body, fears from my rheumatologist that I may have Chron’s disease or worse yet, lymphoma. Additionally, I was working with my LLMD to test for Lyme disease and a number of other coinfections. I was worried about what to do next. Then out of the blue, an endearing stranger, in another part of the country found our story and contacted my wife about helping us out. Through a series of emails I was introduced to Tim and Terry at Life Fitness Academy In Nashville. They agreed to take on my case and give me the best hope I’ve felt in all the years of suffering with inflammatory arthritis. I could tell from the start, their  goal was to help me heal naturally from the inside out. For my particular healing, it was necessary that I should start with the gut.

Over the past several years of constant medications, toxins and poorly chewed foods, it made sense to me that my digestive system could be the foundation for a poorly working immune system. For ten years, previous to my arthritis, I thought I was healthy. I worked out constantly, striving to build lean muscle and ate almost non-stop. For many years I ate six times a day, six chicken breasts a day with various other starches and vegetables, supplementing with protein shakes and anything that seemed healthy. It was working. Or so I thought. I was building muscle and feeling pretty pleased. But I never realized that my intestines and colon were taking all the heat, building up walls inside and preparing for the battle ahead.

Even if antibiotic therapy is still in my future, I soon realized I needed to focus on healing my insides and give my body the nutrients it needs to fight off bacteria and organisms on it’s own. So along with guidance from the caring professionals at Life Fitness Academy, I’ve started an intense detox protocol to naturally heal my leaky gut, remove the toxins from my system and restore my digestive system to it’s proper working order. One of the signs that convinced me of this protocol were hard, clay-like stools and severe constipation during the past six months. That symptom alone was telling me something was wrong.

The protocol consists of eating (or drinking) homemade bone broths from grass-fed beef or organic free range chickens, all the green smoothies I want (only green leafy and cruciferous vegetables with no or little natural sugars) and a good mix of probiotics and systemic enzymes. That’s it. No other foods allowed. Simple, and yes, boring, but so far it has already improved constipation and a lot of my other symptoms.

It’s going to be a long, difficult road ahead. As I write this and sip on a giant glass jar full of green smoothie, I can’t help but think about how this is the most confident I’ve felt in years.

Going After Lyme This Time

Posted on by swollenmystery

Loss of sleep each night due to new symptoms: 7 out of 10. Pain and inflammation levels last month: 8 out of 10. Frustration with taking Plaquenil and Sulfasalazine for a year with no results: 10 out of 10.

It’s been a year since finding a new rheumatologist. Last week was my latest 3 month appointment and I was dreading it. It’s been a month since I tapered completely off Prednisone and a few weeks after having a tongue biopsy due to ulcers I believe were side effects from the medications. While the biopsy results came back negative I closed the door on another dead end. Meanwhile, my symptoms grew worse. I started experiencing things I hadn’t felt during the entire time I’ve been stickered with inflammatory arthritis.

Every night I began waking up every hour or two, finding my knees and my entire back in so much pain it was hard to roll over. Sleeping on my side wasn’t even an option anymore. Mild fevers each night and chills all day became the norm. Headaches behind my eyes, neck stiffness, flu-like aches all over, night sweats, constipation, muscle twitches, extreme fatigue, muscle weakness and jaw pain also became a regular occurrence.

I was at a crossroads. I was about to set up an appointment with my primary care doctor but had an upcoming visit with the rheumatologist in only a week so it seemed logical to wait and see what he had to say. That same week, after some investigating of my symptoms, I couldn’t help but pursue Lyme disease as a possibility. I don’t recall a tick bite except for when I was young, but my symptoms all matched up. And after watching the documentary Under Our Skin a few weeks ago, I was convinced that cases of chronic Lyme are serious and growing quickly.

So I set out to find out more information about chronic Lyme disease and how to get tested. Last year I did get tested via my family doc through Mayo Clinic with a negative result. But I quickly learned that this test can be very unreliable and if your result is negative, you can go no further with testing. With many referrals for testing methods beyond the standard ELISA, which is what most hospitals and clinics use, I set out to find a Lyme Literate Medical Doctor (LLMD). I knew this was the only way to get tested and be sure. It wasn’t long before a list of friends helped me find a LLMD nearby.

Surprisingly, the LLMD had an opening appear in his schedule for the same week so I jumped at the chance to meet with him and discuss my symptoms. I was so excited. Perhaps mostly because the visit with the rheumatologist earlier that week didn’t go so well. Instead of discussing antibiotic therapy as read in The New Arthritis Breakthrough I left the office only with more brochures for Humira, Simponi, Enbrel and discouraging news from the doctor that I may need biologics for the rest of my life. To make matters worse, I was given word that I needed to schedule a colonoscopy to check for Chron’s disease and a CT scan to rule out lymphoma.

Back to the excitement. Even though testing for chronic lyme can be controversial and usually frowned on by insurance companies, it seemed worth it to at least get tested. It was a bit expensive, but it’s either that or tens of thousands each year spent on a biologic bandaid. Furthermore, I decided to get a blood test for coinfections at the same time in case Lyme isn’t the answer. Infections like babesiosis, ehrlichiosis or bartonella can cause some serious complications and might even be the main reason for my symptoms.

I’ve been praying for how to get through these next few weeks of waiting for my test results to come back. And out of nowhere, God gives answers! Not only do I get to meet with a knowledgeable LLMD, but another possible treatment has just opened up before my eyes. With the help of some helpful nutrition, I’m off to start an intense natural detox protocol! More to come in the next post…

Septic Arthritis or Reactive Arthritis?

Posted on by swollenmystery

After a recent blood test to rule out Lyme disease and heavy metal toxicity, I asked my family doctor about bacteria and whether it could be a cause of my chronic knee inflammation. He did a few blood tests and I did test high for Strep B. Since I’m on hold for a few weeks to see a new rheumatologist I decided to do a little googling to see whether there is any correlation. To my surprise, septic arthritis has the exact same symptoms I’ve had for the past 2 years!

According to Mayo Clinic’s definition of Septic Arthritis, germs infiltrate your joint — usually just one — and damage it, causing severe pain. Bacteria most commonly target your knee, though other joints can be affected. This sounds a lot like my condition, which is almost exclusively located in my knees. The symptoms for septic arthritis include fever, shaking chills, pain when bending the joint, swelling and warmth of the affected joint. Last spring I went through several weeks with a low grade fever and chills almost nightly. I no longer have the fevers or chills but the pain and swelling has remained. Furthermore, septic arthritis can be caused by bacteria, including strep bacteria, which starts with an infection somewhere else in the body and eventually works it’s way into and attacking the joint.  More than just a few pieces of this puzzle fit together.

The only thing I’m not sure about is that both my knees are affected now equally, even though it all started with my left knee shortly after my initial injury/swelling incident in my left leg. Some searches indicate this could also be reactive arthritis. Regardless of the name, I’m going to pursue further the possibility that bacteria may be the cause of my inflammation. After my blood tested positive for strep, the doc gave me antibiotics and a short dose of Prednisone. That week I felt so good I wanted to run again. Both knees were almost back to normal and almost all swelling resided. A couple weeks later they are once again swollen and painful however. I think the steroid may have had something to do with my short relapse, but I’m continuing to investigate. I’m now regularily taking probiotics as well. We’ll see what the new rheumatologist has to say in a couple weeks. For now I have renewed hope.