July 15th, 2010

It’s been awhile since the last post. Because it’s summer? Because I’ve been out of town almost every weekend for the past few months? Or maybe I’m just tired. Excuses aside, there is one big reason. My recurring knee inflammation has improved significantly. Sure they do still swell up from time to time, but I’ve finally found some relief. Last week I finally finished 6 months of physical and aqua therapy with the reassurance that I’ve gained strength in my legs for every test. I couldn’t be more excited. While I still can’t run or fully flex my legs (sitting on the floor cross-legged is completely out of the question), I can move around more freely, get outside and wash the car, walk up and down stairs normally, and though it may sound crazy, get up out of a chair or off the sofa without using my arms. Indeed, it has been a tough journey getting to this point. I feel much more energy and  have gained a few much need pounds again.

My rheumatologist in Iowa City has been extremely helpful, courteous and caring. While I continue my search for a complete diagnosis, all the docs will say at this point is “inflammatory arthritis”. Could it be early signs of ankylosing spondylitis or something more serious? It’s possible. At least I now know that with a little help from some medication with less side effects I can exercise enough to gain some strength once again. For now I’m continuing pool exercises twice a week and also tackling a few land exercises. Progress is slow but hopeful for now.

0
March 29th, 2010

For the longest time I’ve had so much fluid on top of each of my knees it felt like I was storing large melons under my skin. Nothing had been working so I decided to search out a new physician. Last weekend I had the chance to meet with a rheumatologist at the University of Iowa clinics. Armored with a stack of medical records and labs an inch thick,  complete spreadsheet of my medical history, daily log of every food I’ve consumed, daily pain and inflammation notes for the past 8 months, and a few x-rays and MRI results, my wife and I set off on a new journey to find some answers. I can’t thank my loving wife enough for organizing all my records and documenting so diligently.

To my surprise we had a great experience with the specialists at the University of Iowa. Both our resident and rhuematologist took special care to study my records and history beforehand and genuinely took an interest in my puzzling case. They spent 3 hours with us, testing, asking questions and analyzing fluid from my knees during the visit. Over the next several months I will be trying a few new prescriptions (sulfasalazine, low-dose predinsone, hydroxychloroquine), thankfully with less severe side effects to see if my swelling will subside. After draining the fluid from my effusions, the docs gave me a cortisone injection in both knees. Needless to say they’ve felt so much better ever since. My right knee is doing great while the left still is a little full and painful to bend. We’ll see what happens when the steroid wears off, but for now workouts have been so much easier and I’ve even been able to regain some leg strength from aqua therapy.

Over the next few months I hope to get results from new x-rays, an MRI and lab tests to find out if we can narrow down a possible diagnosis. Until then, I’m going to enjoy my legs while I have the chance!

1
March 5th, 2010

After a recent blood test to rule out Lyme disease and heavy metal toxicity, I asked my family doctor about bacteria and whether it could be a cause of my chronic knee inflammation. He did a few blood tests and I did test high for Strep B. Since I’m on hold for a few weeks to see a new rheumatologist I decided to do a little googling to see whether there is any correlation. To my surprise, septic arthritis has the exact same symptoms I’ve had for the past 2 years!

According to Mayo Clinic’s definition of Septic Arthritis, germs infiltrate your joint — usually just one — and damage it, causing severe pain. Bacteria most commonly target your knee, though other joints can be affected. This sounds a lot like my condition, which is almost exclusively located in my knees. The symptoms for septic arthritis include fever, shaking chills, pain when bending the joint, swelling and warmth of the affected joint. Last spring I went through several weeks with a low grade fever and chills almost nightly. I no longer have the fevers or chills but the pain and swelling has remained. Furthermore, septic arthritis can be caused by bacteria, including strep bacteria, which starts with an infection somewhere else in the body and eventually works it’s way into and attacking the joint.  More than just a few pieces of this puzzle fit together.

The only thing I’m not sure about is that both my knees are affected now equally, even though it all started with my left knee shortly after my initial injury/swelling incident in my left leg. Some searches indicate this could also be reactive arthritis. Regardless of the name, I’m going to pursue further the possibility that bacteria may be the cause of my inflammation. After my blood tested positive for strep, the doc gave me antibiotics and a short dose of Prednisone. That week I felt so good I wanted to run again. Both knees were almost back to normal and almost all swelling resided. A couple weeks later they are once again swollen and painful however. I think the steroid may have had something to do with my short relapse, but I’m continuing to investigate. I’m now regularily taking probiotics as well. We’ll see what the new rheumatologist has to say in a couple weeks. For now I have renewed hope.

0
March 5th, 2010

It’s been about 8 months now since I first got my ALCAT test results. After 6 months I decided to start introducing some of the foods on my severley to moderately intolerant list back into my diet. The results have been less than stellar. My first big introduction was malt. I figured malt would be great to try since it gave me several foods to choose, one being all purpose flour, which I had been craving for quite some time. It’s just not the same eating pizza or trying to make bread with all whole wheat flour. Every once in awhile it’s nice to bite into a warm, glutenous hunk of fresh baked ciabatta or a mouth watering sweet roll from Texas Roadhouse.  Beginning by consuming almost two loaves of fresh baked breads and topping that off with malted milkshakes and a beer later that evening may have been a little excessive, but this was after 6 whole months of resisting every temptation. Both my knees did swell up considerably a few days afterward, but I’m still unconvinced that this wasn’t just a part of my normal cycle of flare-ups.

All through the 6 month period, my knees have flared regularly, leaning mostly to the higher side of inflammation most days. And during those 6 months I’ve been religious about not eating anything from my severe and moderate list of intolerant food ingredients. I even stayed mostly away from the yellow foods in the mild category. The ALCAT plan recommends staying away from severely intolerant foods for 6 months, moderately intolerant foods for 3-6 months and mildly intolerant foods whenever possible. This meant that restaurants were out of the question, and eating with friends or family was sometimes difficult since my wife and I usually would prepare all of my meals before going on a trip or eating anywhere but home.

If anything, the ALCAT test has taught me to consider what I eat each day and try not to eat the same foods more than two days in a row. Even though I’ve made it past the recommended 6 month period, I still rotate foods in each meal and consciously watch so I don’t eat the same foods for more than two days before rotating.  I’ve since introduced chicken, lemon, beef and a few others every few days without much difference or reaction.

Another habit I’ve picked up from taking the ALCAT test is daily logging every single food I eat along with my pain level and amount of swelling. This helps me keep a log and cross reference any possibility of a reaction to intolerant foods.

Overall, I can say the ALCAT test was worth it, but mostly because it rules out the possibility that my knee inflammation is caused by food intolerance. Staying with it for 6 months and remaining strict with my food intake has allowed me to really look back at my pain and swelling levels and find any clues in this continuing investigation. I still feel that food may be a part of my autoimmune issue, but not the main cause. On a side note, my sinuses seemed to get worse (pressure and headaches) after re-introducing a few foods on my list like malt. I used to get sinus headaches all the time before starting the rotation and elimination diet. If anyone else has taken the ALCAT test and found success I’d love to hear about it.

0
February 25th, 2010

I’ll admit, I’ve been a little paranoid lately about toxins. After finding a significant amount of mold growing on all the window sills and patio door last month, and deciding to turn off the in-home humidifier indefinitely, I suddenly had all sorts of questions popping up in my head. Could mold be causing my immune system to freak out? Do my knees swell when I’m exposed to harmful toxins, bacteria or chemicals? Am I eating too many heavy metals with each bite of fish or vegetables? What about the air I breathe?

Overall I feel like I do a pretty good job of eating the most natural foods and staying clear from harmful chemicals or places that might harbor such toxins. But recently I’ve read that there are several other detox therapies that can help with an autoimmune disorder. Herbal chelation, nutritional therapy, massage, high-heat, intestinal cleansing and environmental controls are just a few. Fasting is another method I’ve considered, but don’t know that I could physically last more than 4 hours without a meal. I would be very interested to hear if any of these techniques have been successful for anyone with an autoimmune illness.

0
February 18th, 2010

Ok, it’s not really a diet. Or maybe I just hate the word, diet. After months of experimenting with all sorts of therapies, supplements and nutrition programs, I began to wonder, how clean is my drinking water? My frequent flare-ups in my knees began almost 2 years ago which led me to the notion that maybe something sparked my immune system to suddenly go haywire. Was it excess mercury from eating too much fish? Perhaps it could be mold growing on the window sills in my home. Yes, I discovered this recently and realized that an in-home humidifier in the winter may not be the greatest idea. Then I concluded that all of my knee inflammation problems seemed to start shortly after I began a new job. Working at a desk in an office designing online interactive media all day ruled out a lot of the usual carcinogens that some workplaces may expel. But one thing I did change along with my new position was drinking a lot of water throughout the day. How could this be bad you might ask? The more water you drink the better. Or at least that’s what they always tell you.

Every day for the past 2 years I’ve guzzled down at least 2 liters of water at work, if not more. That water all came from one filtered machine which appears to be safe. However, my workplace happens to be located in a part of town where the water tastes terrible on it’s own. I could name a couple of nearby restaurants and I’m sure anyone that lives in the area would agree that the water here is awful. Initially this water, filtered or not, does come from the local water supply.

It’s a stretch to think that there might be some sort of coincidence between the water I drink at work every day and my health problems, but I do drink about 4 times what most of my coworkers drink while at work. And I believe there is some truth that genetic factors also play a role in how your immune system reacts to specific chemicals or toxins. So this is why for at least a month, I’ve decided to stop drinking all water that comes from my workplace and only drink water from one outside, filtered source. While I’m not a fan of drinking bottled water often, this is a short-term experiment, and it never hurts to troubleshoot something that is painless.

0
February 16th, 2010

Last week I began a program at the the new local YMCA Healthy Living Center in Clive, Iowa. I thought it was time to do something about my leg atrophy and overall lower body muscle weakness from the past year and a half of not working out due to chronic knee inflammation. After meeting with a physical therapist, I decided to start the recovery program for 3 days each week. I was pleasantly surprised by how nice, helpful and concerned the therapists were and the facilities at the new Y are quite nice. Each session I work with the physical therapist in the aqua therapy pool, doing various exercises to re-strengthen my legs. We usually start with leg raises, step-ups and bicycle kicking and move to walking and even full jogging on the underwater treadmill. At first it was difficult getting used to balancing my semi-buoyant body weight under water, but after a few minutes it felt just like old times! Jogging under water is quite an experience and felt so great since I could feel like running without the heavy impact of my own weight under normal gravity. In my last session I was able to do a sort of sprinting technique against a heavy current. It felt so good to actually feel my leg muscles working instead of my joints. I’m looking forward to continuing the therapy sessions for at least several weeks. I’m hopeful that I will regain the strength I once lost without damaging my knees.

0
December 18th, 2009

breakfast

Reading through a post on Marion Nestle’s “Food Politics” blog this morning got me thinking about my breakfast habits. As usual, Nestle makes some great points about corporate marketing and the content of sugary cereals advertised to kids. As a kid myself once upon a time, I grew up in a household of five, including dad, mom, a brother and sister. We all loved to eat cereal. Limited to healthier selections some of the time, we did, like most households get to have some of those delicious, sugary cereals too. My favorites included FrankenBerry (the original strawberry flavored oat formula before they changed it and made it taste like plastic), Lucky Charms, Peanut Butter, Cap’n Crunch and Fruity Pebbles.

After graduating from college and assuming some sort of responsibility with my own health, I decided not to eat any of these sugar-filled meals for breakfast anymore. I’ve not had any of the previously mentioned cereals now for quite a few years and do feel much healthier for it. However, that doesn’t mean I gave up cereal for breakfast. Aside from the occasional eggs with whole wheat toast, cereal has always been my backup.

As I near the 6 month mark of my elimination/rotation diet, I look back and realize I’ve only eaten processed cereal a few times… so few that I can count the number of times on both hands. Granted, the only cereal I’ve consumed has been Kashi’s “Cinnamon Harvest” which follows my strict ingredient disciplines, but it is still processed. The rest of the time, I’ve gone with oatmeal, homemade baked goods, eggs, juice and/or fruit.

While I can’t say I feel a difference in reducing my inflammation, I feel much healthier and happier that I’ve broken a long-time habit.. a habit of convenience.. a lack of time and effort preparing meals each morning. It is good to know that while sometimes trying a new way of eating may not solve one problem, it’s side effects may help with another.

0
November 25th, 2009

serracor

I’ll admit it. The last few months have not been that great. What used to be weekly flare-ups that would last a few days and go away has turned into swelling in both knees lasting more than two weeks at a time. On top of that, my upper/mid back and left shoulder have been keeping me from much needed sleep at night. After some debate and a good bit of research, I’ve decided to take the next step. This week I started taking Serracor-NK (formerly sold as Neprinol). “What the heck is Serracor?”, you might ask. It’s a completely natural supplement of enzymes designed to help manage excess fibrin levels in the bloodstream and help reduce arthritic conditions, pain, swelling and inflammation. That’s a mouthful, I know. And I’m a bit of a skeptic, but after hearing from others with success from Serracor and no adverse side effects, I was sold. So far, I’ve experienced no drawbacks or irregularities after a full week on the supplement. It may just be coincidence, but my knee swelling has subsided quite a lot in the past 2 days. While maintaining, my rotation diet for another month, I’m committing to Serracor for at least 4 months. Research shows that it takes a few months to really begin experiencing the effects.

0
November 25th, 2009

prayer

If I’ve learned anything from my experience with an autoimmune disease, it’s that prayer can be a blessing. I want to thank so many of my family and friends for their thoughts and prayers. I’m so thankful for the fellowship of those who share my trust in God, and that through prayer, and His will, I can overcome this illness. Listening to words of concern, thoughtful insight, and prayer have given me nothing but hope, confidence and high spirits every time I experience a downhill slide. And it’s those thoughts that help me push through rough times and move past them. Experiencing a hidden illness can be very depressing and extremely disheartening without anyone to talk to about it. I would encourage anyone experiencing a difficult illness such as an autoimmune disease, that sometimes seems hidden from the public eye, to not only seek those knowledgeable about medicine, but to look for those who are willing to share knowledge of God’s Word. For it’s that knowledge and understanding that keeps me determined and fearless that healing is possible.

0